Undefined is an adjective meaning “without fixed limits”. Undefined began when two moms in Birmingham, Alabama who each have a child with a disability had a vision of making access to resources easier for those caring for an individual with special needs. With each of them having two additional children, they found themselves limited in what they were able to achieve and experience with their families. They also found that it was not easy to find what resources were available for help. This had been their experience since receiving their child’s diagnosis.
These moms felt that what was lacking was a central hub of information and networking for special families in the Birmingham area. They also decided that if they felt this way, there must be others that share the same struggle. That is when they decided to make a change for their families, their children, and for others.
Undefined was built on the belief that knowledge is empowering and no family should be left feeling helpless or limited when caring for a family member with a disability. Support and resources should be easy to access and available for all.
Sheetal Cordry, Secretary
Sheetal Cordry is married to Ryan Cordry. She was born and raised in Birmingham, Alabama. After living in Missouri and California, she moved back to Birmingham to raise her family in her hometown of Homewood in 2010. Ryan and Sheetal have three children, Eva, Raj, and Dev. Sheetal’s oldest child, Eva, has a rare genetic condition called Williams Syndrome. Williams Syndrome is present at birth and affects 1 in 10,000 people worldwide. Shortly after birth, Eva displayed abnormal development, medical problems, and cardiovascular disease. Eva saw many specialists and therapists, yet still went undiagnosed until the age of 2.5 years old. Once diagnosed, the Cordrys embarked on a mission to get involved with the Williams Syndrome Association and in the Birmingham community by helping other families have a different diagnostic experience and connecting them with resources. It brings her great comfort and joy to connect with other special families, know that they are not alone, and help one another by providing support. She believes that together, we can increase awareness and knowledge of what is available in our community, and in turn, empower one another, our children, and their futures.
Allie Fincher, Vice-President, Treasurer & Co-Founder
Allie Fincher is married to Anthony Fincher. They are both from the Birmingham area and currently reside in Bluff Park. Allie and Anthony have 3 boys, Ben, AJ, and Walter. Their oldest son, Ben, was diagnosed at 6 months old with a rare brain disorder called Unilateral Open-lip Schizencephaly due to infantile hemiparesis. Schizencephaly is a rare disorder, the estimated prevalence is 1 out of 64,935 births in the United States. That diagnosis causes Spastic Cerebral Palsy that affects his lower extremities. Ben has overcome many obstacles in his life and after countless hours of therapy he has always achieved his goals. In May 2016, Ben’s family was able to raise money to fly him to Bangkok, Thailand for Stem Cell Therapy; which they feel was a success. Later that year, in November of 2016, Ben had a minimally invasive surgery called Selective Dorsal Rhizotomy which was also a huge success and has given him the ability to walk independently. Allie wants to give Ben and every child with disabilities every opportunity to have the best quality of life and thinks access to disability resources and community support is so important
Stephanie Holley, President & Co-Founder
Stephanie Holley is married to Wes Holley. She has lived in Birmingham, Alabama for 10 years and currently resides in Homewood. Wes and Stephanie have three children – JohnWesley, Annabelle and Mary Kate. Stephanie’s son JohnWesley has a rare genetic disorder called Pitt Hopkins Syndrome. He is one of only about 750 individuals worldwide with this diagnosis. Pitt-Hopkins Syndrome is a condition characterized by lack of speech, intellectual disability, developmental delay, fine and gross motor deficiencies, distinct facial features, and sometimes breathing problems, gastrointestinal issues, and epilepsy. After feeling that something was not quite right when their son was about 7 months old, the Holleys broached their concerns several times with professionals seeing their child but did not feel supported. This led Stephanie and Wes to seek out their own evaluation of JohnWesley at 13 months old with the state. Their fears were confirmed, and a long and lonely journey finally led them to a diagnosis by way of genetic testing when JohnWesley was 21 months old in 2015. The Holleys have been fighting to give JohnWesley a voice ever since!